So Alex went to the Dr. yesterday and I ended up talking to him for over 1 hr and I would say somewhere about 2 hr. We spent a lot of time talking about the missing muscle in his chest that is part of a rare abnormality called Poland's syndrome that he has. We also talked a lot about his inability to fall asleep and stay asleep which unfortunately is very common with children on the autism spectrum (ASD), we touched on the aggression issues he has been having, and finally we talked about ways to treat the ASD symptoms.
First he wants to get his vit D levels up to at lest 80 to 100 that in itself is going to be a challenge, but there is some research that show that low vit D levels increases ASD symptoms and I know he has low D levels I am willing to try this.
The next thing was try to put him on a completely gluten free diet. This one I am on the fence about, I know that some children have had improvements on a gluten free diet but I am not sure I want to it is hard enough being dairy and soy free and I am worried about nutrition deficiencies. I am giving it some thought through and looking to see how realistic this is. I am not finding to much research that is giving a positive spin to this lately. So I am not sure this is going to work.
On the other hand with this I may give it a try due to the fact that he has immune labs drawn that show he has issues with some of his immune numbers related to his intestines and his repository system that show he may have a sensitive stomach. I am really on the fence about this, my only thing is I want to do the best for him and make him feel better. I wonder if these numbers will help people who are no careful about what he is eating be more careful because they do not want to hurt him and will stop giving him cheese and milk. product along with soy.
The last thing that was suggested was methyl B-12 shots. They would be an out of pocket expense and I would have to give them at home which I have no problem doing, The thing is this is an experimental treatment and I can not fund much info. I wonder if it worth it to try the one person I told about it says the Dr is full of shit and think every thing can be fixed by a vit or probiotics and diet. The thing is I don't think she realises how much of an effect diet has on autistic children which makes me believe that there may be a nutritional compound in it.
All in all I feel lost. I am going to write more about The B-12 as I do more research and thinking